National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD) is a 501(c)(3) non-profit organization based in Danbury, Connecticut. With a team of 99 employees, NORD is dedicated to improving the lives of individuals and families affected by rare diseases. NORD provides a wide range of services to various stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, and pharmaceutical companies developing orphan products. Their programs encompass education, advocacy, research, and patient support services. NORD works closely with government agencies like the National Institutes of Health (NIH) and the Food and Drug Administration (FDA) to advance the understanding and treatment of rare disorders. As the official sponsor of Rare Disease Day in the United States, NORD plays a crucial role in raising awareness about rare diseases. The organization strives to improve access to treatment and medical representation for individuals living with rare diseases and their families. For more information about NORD's programs and initiatives, visit their website at www.rarediseases.org. You can also connect with them on Twitter at @RareDiseases.